Project title: Integrating Patient-Centered Outcomes in Rehabilitation and Community Spinal Cord Injury Care
Principal Investigator: Dr. Sara Ahmed
Co-Investigators: Dr. Ben Mortenson, Dr. Susan Bartlett, Dr. Dalton L. Wolfe, Dr. Richard J. Riopelle, Dr. Vanessa Noonan, Dr. Diana Zidarov, Dr. David Tulsky
Program: PSR Studies and Demonstration Projects
Institution: McGill University
The overall goal of this demonstration project is to make spinal cord injury (SCI) care more patient-centered through routine collection of a core set of SCI Patient-reported Outcomes (PROs) and clinician ratings (i.e., SCI-CORE Set) that individuals with SCI and health professionals prioritise. SCI-CORE will be collected regularly via online electronic data capture with real-time scoring and reporting (EDCR) to guide SCI rehabilitation treatment.